socialmedian: Father fights for baby's life support

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Source: observer.guardian.co.uk

Nov 01, 2009

Summary

• Case of boy with neuromuscular condition goes to high court
• Parent to submit footage to demonstrate boy's quality of life

A father whose son was born with a rare neuromuscular condition will go to the high court tomorrow in an attempt to stop a hospital withdrawing the support that keeps the child alive.

Doctors treating the one-year-old say the boy's quality of life is so poor that it would not be in his best interests to save him. They are reportedly being supported in their action by the baby's mother, who is separated from his father.

The child, known for legal reasons as Baby RB, was born with congenital myasthenic syndrome (CMS), a muscle condition that severely limits movement and the ability to breathe independently. He has been in hospital since birth.

If the hospital succeeds in its application, it will be the first time a British court has gone against the wishes of a parent and ruled that life support can be discontinued or withdrawn from a child who does not have brain damage.

Lawyers for the father say that the child's brain is not affected by the

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